I been workin in the hospital where we live in New York for 5 years now i am phelebotmist there.I really liked my job but i just took a year off i went on a leave. I hope i did the right thing i took the leave from work so i could stay home and take care of my kids. And so i can learn more about hemophilia and how to care for my son. I am so worried about him. My husband thinks i should go back to work cause of money reasons but i just cant i think i need to take care of the kids i am just so worried. I wanted to know if any one stays home? My son is only 3 months old but soon he will be on the go and when he does i wanna be there to make sure he dont get hurt i dont want no one to watch my kids cause i am scared they might not take the hemophilia seriously. Do u think i did the right thing?
i stay home with my little one too. it's relaly such a personal decision and only you and your husband can decide what is right for you. my suggestion, when and if you decide to go back, would be to try and talk to other hemo moms in your area about daycare. maybe they can suggest someone that has watched their children and knows about the disease.
ReplyDeleteHey Joanne. My name is Kathy and am 23 years old. I also have 2 kids. My son is 17 months old and has severe hemophilia A. We found out about a day after he was born when we circumsized him. Yea...that wasn't a fun time. Well, I was writing because I stay home with my son. In my case, I wanted to go back to work eventually, but my son has had spontaneous bleeds probably once a month and each time we wer hospitalized for like 2 weeks, sometimes even as long as a month. So you see, it's been pretty much impossible. I would have been fired by now. I do think that you and your husband should discuss it. I'm hoping to get a job once his bleeds begin to minimize and we get to a point where we only have to infuse him maybe 3 times a week. Right now I personally wouldn't trust anyone to take care of my son because with this disease, no on is going to know when something is wrong as quickly as I can. We're their moms, we know when something isn't right.
ReplyDelete